As many of you know, the ingredient alpha-glucosylrutin (AGR) has been shown in studies to prevent or lessen the symptoms of PMLE outbreak in many sufferers. Unfortunately, that ingredient was no longer offered in products in the US and was very difficult to find - and if you find it online, price and international shipping is a huge factor!
ALAS, I was contacted by the creator of this new lotion made by Shirudo...
This lotion contains even more of the 'magic' AGR ingredient than my beloved Eucerin Sun Defense Lotion!! As we know, this is such a hard thing to find! There are not a lot of choices out there for those of us suffering from PMLE.... typically the most recommended solution is staying out of the sun!! That is not an option for those of us who love the beach, enjoying an active outdoor lifestyle, playing with our kids at the park, going to the zoo, the pool, etc... Staying inside is not a practical solution!
I truly believe this lotion will finally be able to provide hope and help to PMLE sufferers who don't want to avoid the sun completely!
My First Experience:
I received this lotion in late July... just before leaving for a California beach vacation. It was the first thing I packed.... so excited to test out this lotion containing ARG and Vitamin E.... the ingredients I've raved so much about for the past few years! I discontinued all other 'prevention' methods I have discussed in previous posts (pills, other lotions, etc...), other than continuing to use SPF (Banana Boat dry oil spray) .
I used the lotion as recommended: Before sun exposure and then reapplying every 2 hours while in the sun. I also used it on my most PMLE-prone areas a few days before heading to the beach ... the idea there was to build it up in my system a bit.... not sure if it was necessary, but that's what I did.
I used SPF 4, 8, and 15 (so nothing above 15) while in the sun, over top of the Shirudo lotion. I did not develop ANY PMLE symptoms while on my vacation and came back with an amazing tan! I even experienced a slight sunburn on my chest are {oops!},which is typically the most prone to reaction, and there was no outbreak at all!
PROS:
Applies smoothly with no stickiness - feels like a regular body lotion
Scent-free and soothing to the skin
SPF-free... allowing you to use your own favorite brand and preferred SPF
About the same cost as any other high-quality lotion
NO PMLE symptoms while in the sun during my first trial use!!!
Moisturizing and nearly 100% natural and beneficial ingredients!
The only negative I could come up with was the slight yellow tinge to the lotion .... it should be noted that the key ingredient AGR is yellow, therefore a yellow coloring of the lotion is likely unavoidable! It was not an issue while using it at all. If I noticed a light yellowing on the edges of my swimsuit or clothing, it wasn't bad at all AND completely washed away in the laundry without any special stain treatment. I only note the color because I don't want you to think it's going to be completely white - but I also don't want there to be a staining concern ... I did not experience any issues whatsoever ... even with white suits and clothing.
The lotion is available only online right now by clicking {HERE}.
In conclusion:
I am so happy to have been made aware of this product and I was even more excited to share it with my readers and fellow sufferers! I cannot wait to test it out even more in February when we go to Jamaica... that will REALLY be a good test!! Winter/ Spring vacations is when my skin is the most prone to PMLE symptoms since I do not have a good base tan and my skin isn't used to the sun's harsh rays.
I will of course continue to update my blog with how the lotion is performing during different 'sun experiences'.... but I have to admit I am totally sold already! I love that I can choose my own SPF level (unlike with Eucerin) to apply over it and that the AGR ingredient is more concentrated in this product than the Eucerin Sun Defense (I'm basing that on the color and speaking with the developer of the product).
Thank you for stopping by and I really hope to hear from readers who try this product! I would love to know if it works as well for you as it did for me!! :-)
Previous PMLE posts:
Previous PMLE posts:
http://mommy2connor.blogspot.com/2012/07/pmle-polymorphic-light-eruption.html
13 comments:
How do you treat your PMLE rash once you get one? I figured out that's what is happening during my Caribbean vacations 3 years ago, so I only have to deal with it about once a year. So far, I haven't done anything other than maybe a benadryl and some hydrocortisone cream. But, I just got back from Aruba and I'm suffering from the worst reaction I've ever had. Instead of the little bumps I usually get, my legs are covered in super-itchy, oozing wheals. I took Claratin last night which didn't do much, and the cortisone didn't even phase my itch.
I'm very interested in the Shirudo for prevention; I'll definitely get some before my next trip to the beach!!
Thanks!
I use ice bag to treat the PMLE rash and it is no harm. Hydro cortisone have too much sideeffects to the body and it does work on me most of the time anyway.
I suffer from PMLE for over 10 years. It started only on my hands and now it appears to where every inch skin that has a splits second touch of lights. In the past 5 years my skin is affected by any form of yellow coloured lighting even including natural fire lights and energy saving lights. I have to changed all the indoor lights to cool white colour that is safe for my skin. During the day I have to keep all the blinds shut in the house. I live in Australia where the lights has been affecting me all year long, but worst in Summer. In the past I have tried some Sun Allergy products from C.B.H (http://www.usacbh.com/products/products.asp?articleid=555) persistently for half year. It doesn't seem have any effects on me and my condition just getting worse every year. I would like to try Shriudo, but it seem they do not ship to Australia. Some friend of mine introduced the Colostrum to me recently and i did some research and it shows lots of positive effects on allergy and immune related diseases which has not much effectiveness on other treatment. I have ordered some from NZ (http://www.mipcolostrumnz.com/?gclid=CK7b-auEt7MCFckhpQodalQAiw) and has been taken it twice a day for a week now. It hasn't shown much effect yet. I will keep take it for a month to see if is going to do any miracles. Anyway thanks for this blog and good to know that I am not the only one there suffering. Please keep the good work and I keep trying new stuff and report here.
Cheers!
I use ice bag to treat the PMLE rash and it is no harm. Hydro cortisone have too much sideeffects to the body and it does work on me most of the time anyway.
I suffer from PMLE for over 10 years. It started only on my hands and now it appears to where every inch skin that has a splits second touch of lights. In the past 5 years my skin is affected by any form of yellow coloured lighting even including natural fire lights and energy saving lights. I have to changed all the indoor lights to cool white colour that is safe for my skin. During the day I have to keep all the blinds shut in the house. I live in Australia where the lights has been affecting me all year long, but worst in Summer. In the past I have tried some Sun Allergy products from C.B.H (http://www.usacbh.com/products/products.asp?articleid=555) persistently for half year. It doesn't seem have any effects on me and my condition just getting worse every year. I would like to try Shriudo, but it seem they do not ship to Australia. Some friend of mine introduced the Colostrum to me recently and i did some research and it shows lots of positive effects on allergy and immune related diseases which has not much effectiveness on other treatment. I have ordered some from NZ (http://www.mipcolostrumnz.com/?gclid=CK7b-auEt7MCFckhpQodalQAiw) and has been taken it twice a day for a week now. It hasn't shown much effect yet. I will keep take it for a month to see if is going to do any miracles. Anyway thanks for this blog and good to know that I am not the only one there suffering. Please keep the good work and I keep trying new stuff and report here.
Cheers!
I used to get a "rash" of small, red pimple-like bumps that, if I rubbed or scraped them, would leave a deep red rash for days (if I left them alone, they'd usually go away on their own within a few hours). They only showed up on my chest and belly (and sometimes upper, inner arms), and only after sun exposure. I never had any idea they were of any medical significance, just thought it was some irritating, weird thing about me. I'm fascinated by what you've written here. Thank you!
Pour connaître le garçon, on serait considéré comme Air Max 90 l'objectif fantastique unique en raison de céleste en plus d'être la bienveillance corps tous les éléments de fixation et travailler pour le bien fort. Leur médecin familiariser avec les points qui ont connu une manie en ce qui concerne réjouissances; cela dit que ce serait une folie, dans, ici dans la conception de la confiance due au patient, la force organique infusé sous vraiment qui ont moins diminué que d'un niveau unique.
Hi!
Have you read this info?
http://www.toyosugar.co.jp/en/item/agrutin.html
Do you think eating those foods would help? my daughter has suffered with this from when she was 2 years of age and now is 11. I'm afraid she's being labeled now as having acne. If it was only that simple!
Great information from you, Lindsey. However, as a longtime sufferer, it would be great if you could do a new post with a quick summary that contained your best advice from someone seeking to prevent PMLE...something that includes the Shirudo product now that you've had a chance to better evaluate it. Going on a two week holiday to Mexico in late February and would like to enjoy it fully for the first time in a long time! Thank you.
This is great news Lindsey. I have been living in Turkey and here there is not much thing to do for PMLE sufferers. But always trying to protect myself from the sun is really something irritating. I don’t think that I can find this lotion somewhere here so I am looking for a website where I can buy it online no matter what costs. Can you advise me a website? Thanks a lot by the way.
Hi, I have been reading all of your blogs since being finally diagnosed with PMLE 6 months ago. I have had it for about 7 years - I am 39 now and the only time I didn't get any symptoms for a whole year was when I was pregnant (hormonal related?). Anyway, it came back so I am planning to try the Shirudo (bought today from the link you provided - international shipping is 20 dollars) and also bought helicopter (amazon - about £30 for 30 capsules). I have also found the AGR is present in Eucerins Sun allergy sun protection creme-gel SPF 25.
Ps forgot to say a huge thanks for all the information from you and others who have commented - I will let you know how I have got on - Penny x
First of all thank you for all of the great information...I don't feel so alone anymore. I have had PMLE for over 10 years now and it continues to get worse...but only when I go on vacation. I started taking the heliocare, niacin, beta-carotene, vitamin e and alpha lipoic acid, as I will once again be trying to do an island vacation and am hoping no rash. I did try tanning this time around and did have a reaction as well...but it seems to go away quicker. Oh and I am also using the Eucerin daily moisturizer. Thank you all again.
Hi
Ive just started getting pmle. It started last summer after having my baby.
Finally this feb I got diagnosed with pmle. I haven't a clue what to do with it. Being a muslim im covered when I go out. My face is the only place I get a rash.. n I dont want to start wearing the veil.
The hospital gave me sunsense sun block but it didn't help the other day and as I write this my face is swollen n red.
Just found this site so will see what else I can use. Any adv would be greatly appreciated.
I have 3 kids n do not want to spend being stuck indoors again like last summer. :(
Hello, my name is Chris. I have had PLME since I was 7 years old. My parents and I never had a clue what it was as a kid. I got allergy shots, biopsies, creams, wraps, etc and many, many trips to a dermatologiest office in Philadephia and to no avail. It still did not go away.
I was teased a lot as a child because the kids thought I would be contagious. It was hard for me. I had a very bad case of it all spring, summer and fall long. At one point, they said it was psycological and I liked to scratch myself and wanted to give me psyc meds. Thankfully my parent
did not allow that.
A doctor at the University of PA finally told me what it was when I was in my 20's, but the only treatment they had at the tme was light treatment to "toughen" the skin. I did that at the office, but felt I was sorta doing that myself by exposing myself in the sun a little bit at a time. I still suffer from this every year. I am going to try the Heliocare. I have never heard of it before. Not that I am glad that other people have this condition, but it is nice to know I am not alone. Blessings to all.
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